The following websites are helpful in preparing information ahead of medical appointments:

The American Spinal CSF Leak Foundation

The CSF Leak Association

Spanish Intracranial Hypotension and CSF Leaks Association AHIFUGA

Canadian Headache Society

Migraine Canada

Migraine Quebec

The ILC Foundation

The following social media sites offer information and a forum for those suffering from the debilitating symptoms of a spinal CSF leak:

CSF Leaks and Headaches for Canadians initiated by Betty-Lu Edwards and her team:

Inspire - Health Community

The following are some motivational websites:

http://themighty.com