about us
Spinal Cerebrospinal Fluid (CSF) Leak of Canada
The Spinal CSF Leak of Canada is a national health charity, fueled 100% by volunteers (some with personal experience) and donors, with a mission to improve the health and lives of sufferers from spontaneous intracranial hypotension (SIH) caused by spinal cerebrospinal fluid leaks (“CSF”), and to help equip the Canadian medical community to combat this condition within the country.
For the public benefit of Canadians, the goals are:
1. Assisting in advancing the understanding of intracranial hypotension (“IH”) caused by spinal cerebrospinal fluid leaks (“CSF”) (IH and CSF, collectively the “Condition”) amongst the general public and healthcare professionals across Canada to improve availability and access to better diagnosis and treatment of the Condition;
2. Assisting in advancing medical research and education relating to this Condition and its complications; and
3. Advocating and providing a voice and support to those suffering from this condition and their families to drive positive policy changes.
Spinal CSF Leak Canada achieves its mission through research, education, and advocacy for healthy public policy by raising awareness among the medical community. These efforts are supported by volunteers and funds raised in communities across Canada.
Please note that we are not a medical facility and do not provide treatment, medical advice, individual advocacy, or direct medical care.
Board of directors
(listed alphabetically)
Jonathan Cloutier (Entrepreneur / Marketing Executive) - Cofounder - Director
Melanie Hopper (Lawyer/Partner) - Director
Raja Khouri (Vice-President - Business Development) - Director
Guillaume Lavictoire (Partner/Lawyer) - Cofounder - Director
Bahareh Nourbakhsh Cloutier (Interior Designer) - Founder - Chair
Rosann Seviour, MD, MSc, FRCPC - Director
Martin J. Thompson (Partner/Lawyer) - Cofounder - Director
Zabi Yaqeen (Lawyer) - Director
Financial information