Celebrated annually, Spinal Cerebrospinal Fluid (CSF) Leak Awareness Week aims to increase awareness of spontaneous intracranial hypotension (SIH) or intracranial hypotension (IH) caused by spinal CSF leak and to promote improved access to diagnosis, treatment, and care for all those affected by this condition.
Please join us in making a positive impact on the lives of patients affected by this highly disabling neurological condition. Whether through donations or by helping to share and raise awareness, you can make a difference.
We are delighted to team up with our sister foundations to give this event an international reach.
In recognition of Spinal CSF Leak Awareness Week, the following landmarks will be illuminated in purple:
Arms of the Olympic Cauldron – June 3 (requested by Spinal CSF Leak Canada)
Calgary Reconciliation Bridge – June 3 (requested by Spinal CSF Leak Canada)
Calgary – June 4 (requested by Spinal CSF Leak Canada)
CN Tower – June 3 – the first part of every hour (viewable via webcam HERE) (requested by Spinal CSF Leak Canada)
Vancouver Convention Centre District Markers – June 3 (requested by Spinal CSF Leak Canada)
Halifax City Hall – June 3 (requested by Jen Melvin)
𝐋𝐈𝐆𝐇𝐓 𝐔𝐏 𝐂𝐀𝐍𝐀𝐃𝐀 𝐈𝐍 𝐏𝐔𝐑𝐏𝐋𝐄 𝐅𝐎𝐑 𝐒𝐏𝐈𝐍𝐀𝐋 𝐂𝐒𝐅 𝐋𝐄𝐀𝐊 𝐀𝐖𝐀𝐑𝐄𝐍𝐄𝐒𝐒 𝐖𝐄𝐄𝐊!
One of the most powerful ways to raise awareness is by illuminating landmarks in purple to shine a light on spinal CSF leak.
How You Can Help:
✅ Check if your city has a landmark that participates in awareness lightings (e.g., city halls, bridges, towers, or monuments).
✅ Submit a request for purple lighting in support of Spinal CSF Leak Awareness Week.
✅ Ask for Wednesday, June 3, but if that date isn’t available, any other day during Awareness Week works too.
✅ Let us know once your request has been approved so we can track locations and celebrate the success together.
Not sure where to start? We can help! Email us at info@spinalcsfleakcanada.ca with the subject line Spinal CSF Leak Awareness Week.
Support Awareness with a City Proclamation
A proclamation is an official declaration issued by a city or municipal government recognizing an important cause, event, or awareness campaign. Proclamations help raise public awareness and show community support for Spinal CSF Leak Awareness Week.
How to request a proclamation:
✅ Contact your city hall or municipal clerk’s office and ask about their process for requesting a proclamation.
✅ Submit a request asking the Mayor or City Council to proclaim June 1–7, 2026, as Spinal CSF Leak Awareness Week in your city.
✅ You may use the draft proclamation outline HERE when submitting your request.
✅ Once your proclamation has been approved, please email us so we can add it to our website.
If you need assistance, please contact us at info@spinalcsfleakcanada.ca with the subject line Spinal CSF Leak Awareness Week.
Proclamations already requested by Spinal CSF Leak Canada and our volunteers:
Calgary
Ottawa
Toronto
Vancouver
JOIN THE "STAND UP FOR SPINAL CSF LEAK PATIENTS" Fundraising CAMPAIGN
HELP RAISE FUNDS FOR RESEARCH, EDUCATION, AND BETTER CARE IN CANADA.
To learn more and see how easy it is to get involved, please click HERE.
Help us raise awareness by getting your Stand Up For A Leaker t-shirt today!
To order you Stand Up For A Leaker T-shirt, click HERE
Thank you for your support, and let's make this a week to remember!
#SpinalCSFLeakAwarenessWeek2026
#spinalcsfleakweek