Celebrated annually, Spinal Cerebrospinal Fluid (CSF) Leak Awareness Week aims to increase awareness of spontaneous intracranial hypotension (SIH) or intracranial hypotension (IH) caused by spinal CSF leak and to promote improved access to diagnosis, treatment, and care for all those affected by this condition.

Please join us in making a positive impact on the lives of patients affected by this highly disabling neurological condition. Whether by joining the “Stand Up for Spinal CSF Leak Patients” campaign or by helping to share and raise awareness, you can make a difference.

We are delighted to team up with our sister foundations to give this event an international reach.

Raise awareness by getting your Stand Up For A Leaker t-shirt today!

To order your Stand Up For A Leaker T-shirt, click HERE

In recognition of Spinal CSF Leak Awareness Week, the following landmarks will be illuminated in purple:

Calgary, AB

• Calgary Tower – June 4

Cornwall, ON– June 3 to 7

• Fountain at 340 Pitt Street

Halifax, NS

• City Hall – June 3

• Province House (Nova Scotia Legislature) – June 3

Moncton, NB

• City Hall – June 3

• Downing Street – June 3

• Downtown Place – June 3

• Avenir Centre – June 3

Niagara, ON – June 3

• Niagara Falls (The night lighting will be visible by webcam HERE.)

  (In collaboration with The Niagara Falls Illumination Board.)

  The Falls will be illuminated Purple at 10pm for a 15 minute duration. Please note that all Illumination times are approximate and subject to change according to light conditions. For those planning to visit the park to view the illumination in person, please follow all applicable public health guidelines.

Ottawa, ON

• The Ottawa Sign at York Street Plaza in the ByWard Market District – June 3

Saskatoon, SK

• City Hall – June 7

• Prairie Wind Monument – June 7

St. John’s, NL

• City Hall – June 6

Toronto, ON

• CN Tower – June 3 (first part of every hour). The night lighting will be visible by webcam HERE

• The 3D Toronto sign – June 7

Vancouver, BC – June 3

• Convention Centre’s district markers and the arms of the Olympic Cauldron

Winnipeg, MB – June 2

• The Esplanade Riel Bridge

• The Winnipeg sign

A heartfelt thank you to all the cities, including the Niagara Falls Illumination Board. We would also like to sincerely thank the volunteers from Spinal CSF Leak Canada and the many members of our community who submitted requests in their cities and helped make these illuminations possible. Your advocacy and support truly make a difference. 💜

For those planning to visit an illumination in person, please follow all applicable public health guidelines.

📸 If an illumination is taking place in your city and you are able to attend, we would love for you to take photos and tag us on social media so we can share them with the community.

"STAND UP FOR SPINAL CSF LEAK PATIENTS"

Peer-to-Peer Campaign

Help us end the suffering caused by spinal CSF leak.

Easy to participate! Please click HERE and follow the steps.

Thank you for your support, and let's make this a week to remember!

#SpinalCSFLeakAwarenessWeek

#SpinalCSFLeakWeek2026