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Spinal Cerebrospinal Fluid (CSF) Leak of Canada

Spinal CSF Leak Canada is a Canadian volunteer organization in the process of obtaining charitable status.  The purpose of the organization is to improve the lives of Canadians suffering from intracranial hypotension caused by spinal CSF leaks.

We seek to achieve our goal through a number of means:

1.     Raising awareness of the condition among the general public, and positioning Spinal CSF Leak Canada as a trusted source of information regarding the condition;

2.     Raising awareness of the condition among healthcare professionals across Canada; 

3.     Fundraising to assist in advancing medical research relating to the causes, diagnostic testing, treatments and post-care treatment/outcomes of spinal CSF leaks; and

4.      To provide patient advocacy and a forum for those suffering with spinal CSF leaks.  

At Spinal CSF Leak Canada we understand what patients are going through.  We want you to know you are not alone.

Board of directors

(listed alphabetically)

Jonathan Cloutier (Entrepreneur/ VP Sales & Marketing)

Guillaume Lavictoire (Partner at Scargall Owen-King LLP)

Azadeh Nourbakhsh (Lawyer at Nourbakhsh Law Office)

Bahareh Nourbakhsh (Designer)

Martin J. Thompson (Partner at McMillan LLP)

Honorary members

Honorary Members are individuals who have distinguished themselves through their patient support efforts and other initiatives in advancing the spinal CSF leak cause in Canada.  

Spinal CSF Leak Canada is pleased to recognize Betty Lu Edwards and Ingrid Wall Syndal as honorary members of the Spinal CSF Leak Canada organization for their pioneering work and dedication.  

Medical Advisory Team

(listed alphabetically)

  • Farnaz Amoozegar, MD, MSc, FRCPC

    • Clinical Assistant Professor - Department of Clinical Neurosciences - Cumming School of Medicine - University of Calgary and Hotchkiss Brain Institute

  • Arsenio Avila, MD, FRCPC, FCCP, DABPM

    • Assistant Professor - Anesthesiology, Critical Care and Pain Medicine - University of Toronto, University of Ottawa and Northern Ontario School of Medicine

  • Ian Carroll, MD, MS Epi

    • Assistant Professor of Anesthesiology -  Preoperative and Pain Medicine Stanford Headache Clinic - Stanford University School of Medicine

  • Connie Deline, MD

    • Vice-President - Chair - Medical Advisory Board, Spinal CSF Leak Foundation, USA

  • Richard Farb, MD, FRCPC

    • Associate Professor - University Health Network and Mount Sinai Hospital Toronto, Ontario

  • Marissa Lagman, MD

    • Assistant Professor - Director, Pediatric and Young Adult Headache/Concussion Program - Centre for Headache Women's College Hospital - University of Toronto Women's College Hospital, Toronto, Ontario

  • Christine Lay, MD, FRCP, FAHS

    • Director, Centre for Headache Women’s College Hospital - Associate Professor of Neurology at University of Toronto

  • Linda Gray Leith, MD

    • Neuroradiologist, Associate Professor of Radiology, Duke University School of Medicine, North Carolina

  • Eric Massicotte, MD, MSc, MBA, FRCSC

    • Associate Professor, University of Toronto - Staff Neurosurgeon, University Health Network - Director of Undergraduate Education for Neurosurgery - Medical Director, Concussion Program Altum Health - Medical Director, Back & Neck Program Altum Health

  • Phillip Peng, MBBS, FRCPC, Founder (Pain Medicine)

    • Professor, Department of Anesthesiology and Pain Management; Director -Anesthesia Chronic Pain Program, University Health Network and Mount Sinai Hospital - Director (Interim), Wasser Pain Management Centre, Mount Sinai Hospital, University of Toronto

  • Wouter I. Schievink, M.D.

    • Professor of Neurosurgery - Director, Cerebrospinal Fluid Leak Program - Department of Neurosurgery Cedars-Sinai Medical Center, Los Angeles, CA

  • Roseann Seviour, MD, MSc Epi, FRCPC

    • Family Physician, St. John’s Newfoundland