The following websites are helpful in preparing information ahead of medical appointments:

The American Spinal CSF Leak Foundation

https://spinalcsfleak.org

The CSF Leak Association

https://www.csfleak.info

National Organization of Rare Disorders
https://rarediseases.org/rare-disease/spontaneous-intracranial-hypotension/

Canadian Headache Society

https://headachesociety.ca/

Migraine Canada

https://migrainecanada.org/

Intracranial Hypertension

https://ihrfoundation.org/

Ehlers-Danlos Society

https://www.ehlers-danlos.com

The ILC Foundation

https://www.theilcfoundation.org/

The following social media sites offer information and a forum for those suffering from the debilitating symptoms of a spinal CSF leak:

https://www.inspire.com

CSF Leaks and Headaches for Canadians initiated by Betty-Lu Edwards and her team:

https://www.facebook.com/groups/319581895041912/

The following are some motivational websites:

http://www.somethingwonderful.com

http://themighty.com