Celebrated annually, Spinal CSF Leak Awareness Week aims to increase awareness of intracranial hypotension (IH) caused by spinal Cerebrospinal Fluid (CSF) leak and to incite improvement to access to diagnosis, treatment and care for all the sufferers from the condition.

To order you Stand Up For A Leaker T-shirt, click HERE

Go Purple Day!

June 4th

Help Us Light Up Canada in Purple for Spinal CSF Leak Awareness Week!

One of the most powerful ways to raise awareness is by illuminating landmarks in purple to shine a light on spinal CSF leak.

How You Can Help:

✅ Check if your city has a landmark that participates in awareness lightings (e.g., city halls, bridges, towers, or monuments).

✅ Submit a request for purple lighting in support of Spinal CSF Leak Awareness Week.

✅ Ask for Wednesday, June 4 (Go Purple Day), but if that date isn’t available, any other day during Awareness Week works too.

✅ Let us know once you’ve submitted a request so we can track locations and celebrate the success together.

Not sure where to start? We can help! Email us at info@spinalcsfleak.ca

We are delighted to team up with our sister foundations in the UK and the US to give the event an international reach.

Please join us in making a positive impact on the lives of patients affected by this highly disabling neurological condition. Whether through donations or by helping to share and raise awareness, you can help us provide hope.

Thank you for your support, and let's make this a week to remember!

#SpinalCSFLeakAwarenessWeek2025 #leakweek2025 #spinalcsfleakweek