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Highlights From 2025

Canada-Wide SIH Case Rounds for Physicians

Organized quarterly since 2022, the Canada-Wide SIH Case Rounds for Physicians continued in 2025 with sessions held on January 23 and May 1. These physician-only rounds are chaired by Dr. Farnaz Amoozegar, neurologist and Clinical Associate Professor at the University of Calgary. These rounds (approximately 90 min duration with two cases presented at each rounds) feature spontaneous intracranial hypotension (SIH) case presentations covering clinical history, imaging, procedures/treatments, and discussion among physicians in neurology, anesthesiology, neuroradiology, and neurosurgery. This is an excellent venue to discuss complex SIH cases, as many knowledgeable experts in SIH from Spinal CSF Leak Canada's Medical Advisory Board, representing both Canada and the USA, attend and provide their invaluable insights.

Learn more about the Canada-WIde SIH Case Rounds HERE

Educational Webinars for Patients, Families, and Clinicians

This year, we offered high-quality learning opportunities featuring leading experts:

  • Postural Orthostatic Tachycardia Syndrome (POTS) – January 9, 2025

  • Embolisation transveineuse des fistules duro-veineuses du LCR – April 12, 2025

  • Navigating Pediatric Spinal CSF Leak: Insights into Diagnosis and Care – December 11, 2025

These webinars are part of our continuous efforts to empower patients, families, and clinicians with current, accurate, and practical knowledge.

Launch of the Canada SIH Referral Directory

A milestone resource for improving access to care. Our national physician directory provides:

  • referral criteria and guidelines

  • names and contact information of SIH-experienced clinicians

  • available diagnostics (MRI, DSM, CT myelography, etc.)

  • treatment options at each centre

  • approximate wait times

This secure, password-protected tool is now available to physicians nationwide, helping to streamline the referral process.

Access Canada Referral Directory HERE

Spinal CSF Leak Patient Pamphlet (English & French)

Created by Spinal CSF Leak Canada with the support of our Medical Advisory Team, this educational pamphlet provides:

  • causes and symptoms

  • diagnostic pathways

  • treatment options

  • aftercare and recovery guidance

Download HERE

Spinal CSF Leak Awareness Week (June 1–7, 2025)

In partnership with our sister foundations in the UK and US, we worked together to amplify global awareness.
With your help, our social media posts were shared across Canada and beyond, allowing more patients to be recognized, believed, and diagnosed sooner.

View Highlights HERE

2nd Canadian SIH Conference (May 31–June 1, 2025)

We brought together world-leading experts, clinicians, and patients for two days dedicated to improving SIH care.
Video presentations are now available HERE.

Exhibiting at the Canadian Headache Society Conference (September 26–27)

Our team proudly represented SIH patients and caregivers, shared our mission, and connected with neurologists and headache specialists across the country to improve recognition and care.

Sharing Knowledge & Patient Voices All Year Long

Throughout 2025, we continued to expand our educational reach, by sharing:

  • scientific papers

  • expert videos

  • patient stories and testimonials

  • bilingual content as much as possible (English & French)

These resources were shared weekly across our social media platforms, in English and French whenever possible, helping us reach patients, caregivers, and clinicians nationwide.

Everything we accomplished this year was made possible because of you.

Your donations, participation, encouragement, and willingness to share your stories continue to fuel real change in Canada, bringing us closer to earlier diagnosis, more equitable access to treatment, and improved quality of life for all those affected by spinal CSF leak.

💜Thank you for standing with us in support of spinal CSF leak patients. We look forward to continuing this important work together in the year ahead.

Warmest wishes for a peaceful holiday season and a healthy new year,
From all of us at Spinal CSF Leak Canada

DONATE TODAY!

Donations made before December 31 receive a 2025 tax receipt.