Newsletter

Dear Community,

We are excited to share several important updates, new resources, and our upcoming events with you.

Highlights:

  • Recorded presentations from the 2nd spontaneous intracranial hypotension (SIH) Canadian

  • Upcoming educational webinar

  • Curated list of key articles published this year

  • Giving Tuesday campaign to support spinal CSF leak education, research, and advocacy

We also extend our sincere gratitude to our donors. Your generosity makes everything we do possible from raising awareness, supporting research, and expanding educational resources, to hosting events like the national conference.

We are pleased to share that the recorded presentations from the 2nd Canadian SIH Conference are now available, allowing us to extend the event’s impact and reach a broader audience.

These presentations cover:

  • clinical diagnosis of SIH

  • radiographic modalities

  • percutaneous and surgical treatment options

  • Canadian research highlights (funded by Spinal CSF Leak Canada) and Spinal CSF Leak Canada initiatives

  • patient and caregiver–focused sessions on coping and healing strategies, managing the emotional and mental toll of SIH, caregiver testimonials, and advocacy

Watch all the presentations HERE

Join Our Upcoming Webinar

Our next live educational webinar is approaching:

Topic: Navigating Pediatric Spinal CSF Leak: Insights into Diagnosis and Care
Speaker: Dr. Mesha Martinez, MD
Date: Thursday, December 11, 2025
Time: 6:00 p.m. – 7:00 p.m. (EST)

Register HERE or scan the QR code

 Curated list of key articles published this year

To help our community stay informed, we’ve created a curated list of Key publications from 2025.

View the list HERE

Be Part of the Largest Generosity Movement

Giving Tuesday is just a few days away! This is the biggest celebration of generosity and your generosity goes a long way.

When you donate to Spinal CSF Leak Canada, you directly support:

🌟 Life-changing Awareness & Advocacy
Earlier recognition of spontaneous intracranial hypotension (SIH) or spinal CSF leak helps reduce years of suffering and misdiagnosis.

💜 Patient & Family Support
Providing accessible, evidence-based information and guidance to help patients and their families navigate care and feel less alone.

💡 Medical Education & Training
Supporting Canadian SIH conferences, educational webinars, and SIH case rounds that equip physicians, patients, and their families with the latest knowledge in diagnosis and treatment.

🔬 Research to Improve Outcomes and Understanding of This Debilitating Condition
Funding critical studies, including expanding the Canadian SIH Registry nationwide. (Thanks to the generosity of our donors, we have already contributed seed funding to help launch this registry. Currently, the SIH Registry exists at two centres.) Expanding this registry nationally would vastly improve care, research collaboration, and policy development, helping to establish standardized care and ensure better outcomes for SIH patients.

This Giving Tuesday, we are aiming to raise $3,000, and we need your help to get there. Please consider donating today. Your support helps us continue expanding education, funding research, and improving access to care nationwide.

Every donation, big or small, helps.

Donate here

 *Spinal CSF Leak Canada is a registered charitable organization, and a tax receipt will be issued for all donations.